Monday, February 22, 2016
Here I sit at 2 am watching my husband sleep. The hum of the ventilator and the air mattress keep this room from being too quiet. The noise makes me feel like I am loosing my hearing. It's loud and quiet at the same time. He sleeps so peacefully. It's been a difficult few days for him, stomach problems and minor fever. Tonight is the second night that I am nurse. I am not good at sleeping during the day so I've had 4 hours sleep in the last almost two days. I worry about being too tired, it's easier to feel down and overwhelmed. I've already broken my diet fifty times in the last two days. Stress does that. The nurse cancels and I need chocolate. There is no point in fighting it.
It has been three years since Yitzi's diagnosis and we have all changed so much in that time. I wish I was the person I used to be. So full of hope, so certain that our miracle would come any second. By now I feel like I have some version of PTSD. Three years running on fumes. The stress does not lessen ever. The problems become more difficult and we are all exhausted. I can't seem to focus well or remember things. How do people live in panic mode? The human body is not built to be under constant stress. It takes a heavy toll on me. Many days I would rather stay home then attempt a brave face in public. The effort to seem normal is getting unbearable. I find reminders of the life we had everywhere. They are both beautiful and sad to me. Watching fathers play with their kids, husbands and wives going out together, friends marrying off children. I wonder if people appreciate what they have. I try hard to stay away from memories at night. It makes sleep even harder, but tonight sleep is not an option so I have nothing to worry about.
Thursday, February 11, 2016
I want to tell you something about dedication. Every three months my husband has to have his treach changed. It is usually done in the hospital but for him they do it at home. It takes ten minutes to set him up, about a minute to actually change it, and ten minutes to clean him up. Yitzi likes me to be there with him so he doesn't feel alone. All day I have been dreading it. It makes my knees weak and it's terrifying to me that they remove his ability to breathe. Even if it's for less then a minute. So in order to prepare for being knocked out for part of today, Yitzi started writing his Dvar Torah yesterday. He wrote all morning. He wrote after being given the sleepy pill. He wrote while they prepared him, he paused while they changed the treache and continued while they cleaned him up. He kept fighting sleep while he edited it. He fought it for an hour in a half, until he felt it was done. Then he went to sleep. I'm sure he was in pain, and uncomfortable, and so drowsy, yet more then all of that, he is dedicated. Dedicated to the Rebbe, to teaching, and to you.